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What is CaringforCarers?

CaringforCarers (C4C) is a website that comprises a range of projects that aim to support, educate and empower the caregivers of people living with schizophrenia:

  • – The C4C Survey, exploring the experiences of over 1,100 caregivers from 22 countries worldwide.
  • – The Carer Academy, first-of-its-kind online course for carers, entitled ‘Caring for People with Psychosis & Schizophrenia’.
  • – The CaringforCarers website is a caregiver hub.
    The CaringforCarers initiative is built on real-world caregiver* insights and aspires to create meaningful, positive change in the lives of caregivers around the world.
*Caregivers are those in the circle of care, including family members and other significant people, who provide unpaid support to a person living with mental illness.

The C4C Survey

The C4C Survey, the first of its kind, was undertaken by the European Federations of Associations of Families of People with Mental Illness (EUFAMI), in collaboration with LUCAS, the centre for care research and consultancy at the University of Leuven. Providing a deep insight into the experiences of caregivers of people with psychosis, including the challenges they face and their well-being, the survey identified a strong need for a dedicated resource for caregivers – which resulted in the development and introduction of this CaringforCarers website.

The Carer Academy

As a unique and comprehensive caregiver hub, the CaringforCarers website provides relevant, reliable and valuable information to caregivers through the online course ‘Caring for People with Psychosis & Schizophrenia‘. This content is guided by an independent, international committee of leading figures from within the field of psychiatry and mental health – the CaringforCarers editorial board:

Professor Shitij Kapur, Executive Dean & Head of the Institute of Psychiatry, Psychology & Neuroscience, London

Ella Amir, Executive Director of AMI-Quebec Action on Mental Illness, Montreal, Canada

Professor Richard Newton, Medical Director at Austin Health, Melbourne

Connie Magro, Vice President at EUFAMI Belgium

The course also provides the opportunity for caregivers to share their views and experiences with others from around the world. It is open to anyone with an interest in psychosis and caregiving issues and no prior knowledge of psychosis or experience of caring is required, although some medical terminology is used. Additional materials which provide further information on the topics discussed are available, and include academic papers.

Through Future Learn, a free, innovative online education platform, the online course ‘Caring for People with Psychosis & Schizophrenia’ provides access to a two-week educational course led by internationally renowned Institute of Psychiatry, Psychology & Neuroscience (IoPPN) of King’s College London.

The CaringforCarers website

Alongside the Caring for people with Psychosis & Schizophrenia course, the CaringforCarers directory provides quick and easy access to an extensive bank of useful caregiver resources, curated in consultation with the CaringforCarers editorial board. Conveniently grouped into meaningful themes and topics to encourage further reading, these resources are continually refreshed to ensure the most relevant and valuable information is always readily available. Practical support for caregivers is also available through the CaringforCarers directory; with local care and support group information tailored to their region.

Guided by patient and carer advocacy organizations and with the support of the CaringforCarers editorial board, CaringforCarers is an ongoing initiative. Committed to providing meaningful support, up to date information and valuable resources, CaringforCarers is continually working towards a better future for caregivers of people living with schizophrenia.